A research project is looking for male and female teens, ages 13-17 years, to assist with the development of Pinpoint, a brand new interactive mobile app that helps young Sickle Cell Disease (SCD) patients learn to assess, track, better understand and talk about the pain caused by this blood disorder.
If you have a child between the ages of 13-17 years old who has SCD, you and your child may be eligible to participate in this study sponsored by The National Institutes of Health.
Both parents and children will be asked to participate in the trial. Teens will be asked to use the Pinpoint app for up to 12 weeks and complete surveys about their experience. Parents will be asked to complete surveys as well.
The surveys will be conducted online, providing feedback on Pinpoint’s function, design, and meaningfulness. Because the sessions will be virtual, participants may reside anywhere as long as you and your child have internet access and either a tablet or smartphone.
For ethical reasons, we must first speak with the teens’ parent or legal guardian to enroll them in the study.